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Komal Rajan - My Mother and Inspiration for HPA |
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My interest in medicine and, ultimately, the reason I
started this patient advocacy business was due to my
mother's battles with medical illness for over half of her
life. When I was six, she was diagnosed with an autoimmune
disease called IgA nephropathy, which required her to get a
kidney transplant one year later. She required a second
kidney transplant when I was 14. Eight years later, she
developed end stage kidney disease again, but she could not
get another transplant, so she was put on dialysis. |
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Being on chronic dialysis was difficult enough, but she
developed so many other health problems later on that it
became difficult for her physicians to handle it all. She
had different doctors for different problems at different
times, but each one had limited time to spend with her.
Oftentimes, there wasn't anyone who could oversee everything
and "put it all together" for her. She usually had more
questions than anyone had time to answer. Sometimes, she was
given the wrong diagnosis or treatment, and a few times
she was treated less than appropriately by medical
staff. She became scared and, at times, mistrustful of the
medical system, and she didn't know where to turn.
By
the time all these problems started, I was in my fourth year
of medical school, so with the knowledge and experience I
had, I got involved as a mediator between my mother and her
different health care teams. I would explain to her doctors her entire
medical condition and history, explain to her
what the doctors wanted to do and why, and bridge any
divides between her and her health care teams. During my
residency and fellowship, as I acquired more knowledge and
experience with the health care system, I was able to do
more to advocate for her care, including helping her doctors
come up with the right diagnoses and best possible treatment
plans for her various problems. For the eight years
I advocated for my mother, I was able to help optimize her medical
care and improve the quality and length of her life by three
years more than what was expected based on her condition.
During the time I was advocating for mother, I noticed
there was a lack of health care advocates for patients/families facing
major health problems like my mother did. Of the few health
care advocates who are available, most are not medically
trained. I also noticed and felt during my residency and
fellowship training how doctors are under increasing
pressure to see more patients in less time. This is due to
increased health care needs of the public with a limited
supply of health care providers, combined with progressively
declining insurance reimbursement rates for a doctor's time,
forcing doctors to squeeze in more patients per hour to stay
financially viable. On the other hand, procedures and tests
are better reimbursed, which is one reason why patients find
themselves receiving less of a doctor's time, but
getting more tests
and procedures instead.
The problem with all of this is that patients and their
families need more than just a couple of minutes with their
doctor, especially when a patient is very ill and their
families are very scared and confused. Medicine is both a
science and an art, and the art of medicine is the time it takes
to listen to, educate, and comfort patients and their
families. It is this "art of medicine" that is
dying in our current health care system, and that is why
patients and families feel less quality in their health care
today, even though the science has
improved.
By the time I finished my fellowship training in nephrology,
I felt like it was time to CHANGE the health care system,
not perpetuate its problems. There was no better place to
start than in my hometown of Houston, Texas, home to arguably the largest
health care center in the world, yet somehow previously
lacking a health-related private patient advocacy service. Therefore, I created
this patient advocacy practice so that patients
and their families could spend as
much time as they want with a medical professional to feel
more educated, empowered, and comforted during their time of
need. I will look after you and your family the same way I
looked after my parents . . . . and that shall be how I
honor their legacy. |
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Dedicated to my late mother, Komal Kay Rajan,
whose life's story inspired the creation of HPA,
and to my late father, Dr. Renga Ray Rajan,
whose life's hard work and sacrifice made HPA ultimately
possible.
Copyright
© 2013 Houston Patient Advocacy. All rights reserved. |
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